Using the HCL Patient Community
The Hairy Cell Leukemia Patient Community is a community-driven online space for patients and families affected by hairy cell leukemia to connect with others and both submit questions and answer questions asked by other users. This is a place where all patients and caregivers should feel welcome to share personal experiences and stories (as much or as little as you wish to share) and where you help others while finding comfort and support.
ASK
Ask a question that matters to you, so that other people can help by providing information. When asking a question, you should categorize it in a topic, making it easier for others to find and answer your question.
Have an answer to a question? Help other users out and offer your own insight and experience. Use the category list on the right side of each page to find open questions related to a topic you know about or have experience with. You can also use the search box on the top of each page to find questions and answers related to specific words and phrases.
SHARE
Your story about your diagnosis or treatment can help others. Post about your experiences. Share your story. Others will appreciate it.
MODIFYING YOUR PROFILE AND SETTINGS
Want to change how you receive notifications? Click on 'Your Account' to adjust your settings and preferences. By default, you will receive email notifications when other users respond to your questions or comments. However, you can change this in your settings. You can also subscribe to categories to receive email notifications when there is activity in a topic that interests you.
Guidelines
Only questions that do not violate the community guidelines are allowed on Hairy Cell Leukemia Patient Community.
We encourage you to:
- Share what you know.
- Be courteous.
- Be a good citizen. When you see a great question or answer, give it a thumbs-up. If you see abuse, report it.
- Cite your sources. Give credit where it is due.
- Ask clearly. Keep your questions precise, but be descriptive enough to help people understand what you're asking.
- Categorize correctly. Placing your question in the right category ensures that it is seen by people who can give you information and support.
Please do NOT:
- Vent, rant or use hate speech
- Be mean or obscene
- Cheat
- Violate the law
- Behave maliciously
- Do harm